My name is Taniya. I am 30 years old. I have Osteogenesis Imperfect, OI as it's commonly called. Even more commonly it's referred to as "brittle bone disease."
Let's get through the specifics (the boring medical stuff.) OI is a genetic disorder that affects the type I Collagen the body produces. That Collagen is, either, insufficient or of poor quality. This becomes a disease that spills over into all connective tissues. In my case it was not only my bones that were under attack: I had a blood vessel in my Brain rupture, a heart valve go bad. Interspersed in there were 91 broken bones.
In a nutshell that is the "definition" of my disease. My struggle has always been how NOT to allow it to be the definition of my name, my being and my story.
No comments:
Post a Comment